YODAA - Resources

While YODAA seeks to provide support to all its members, it can't do it alone. The following are various resources that may help provide information about your diagnosis or information about ostomies and diversions, in general. If you have a resource that you would like to share with YODAA, please contact us, and upon review, we will add your resource to our list.

National Organizations

United Ostomy Associations of America (UOAA)

  • List of support groups (for support – also potential Rally sponsors)
  • “Phoenix” magazine published 4 times a year (free trial issue available)
  • Discussion Boards for Teens, Parents, those with continent diversions, other
  • YODAA is an Affiliated Support Group (ASG) of the UOAA

International Ostomy Association

United Ostomy Association of Canada

Campaigns and Media

Uncover Ostomy - Jessica Grossman's awareness project to inspire a positive online discussion about her ostomy and increased quality of life for people suffering through terrible illnesses.

Talkin' 'Bout Guts - A new podcast that takes 'guts' talk out of the bathroom and into living rooms across the world!

Networking

Meet An Ostomate - Dating service for ostomates.

Shaz's Website - An interactive support page for new and experienced ostomates.

Medical Information

American Gastroenterological Association - Advancing the Science and Practice of Gastroenterology

Cleveland Clinic - National top four for hospitals with emphasis in colorectal surgery

Wound, Ostomy & Continence Nurses (WOCN)

  • Professional Society for nurses who specialize in these fields
  • Locate a nurse near you

Social Security and Disability

Medical Professionals

Dr. Brad Champagne - Colorectal surgeon and speaker at YODAA's 2008 conference

Virtual Network Partners

Thirty Plus Network - A UOAA ASG geared toward those who are 30 years old and beyond

GLO (Gay and Lesbian Ostomates) - A UOAA ASG geared toward gay/lesbian and bisexual ostomates, their friends, and families

Local Support Groups

  • We encourage all of our members to attend the meetings with their local support groupds. To find a local group in your area, Click Here.

Diagnosis-Specific Links

Cancer

The American Cancer Society

The Colon Club

Exstrophy

Association for the Bladder Exstrophy Community (ABC)

Familial Adenomatous Polyposis (FAP)

FAP Support

Hirschsprung's Disease

Hirschsprung's Disease Information

IBD - Crohn's Disease and Ulcerative Colitis

Crohns & Colitis Foundation of America (CCFA)

IBS Crohn's - Excellent website for info

J-Pouch Support and Information

Red Lion Group - The UK charity for people who have, or are considering having, a J-pouch operation

Spina Bifida

Spina Bifida Association (SBA)