YODAA - Resources
While YODAA seeks to provide support to all its members, it can't do it alone. The following are various resources that may help provide information about your diagnosis or information about ostomies and diversions, in general. If you have a resource that you would like to share with YODAA, please contact us, and upon review, we will add your resource to our list.
National Organizations
United Ostomy Associations of America (UOAA)
- List of support groups (for support – also potential Rally sponsors)
- “Phoenix” magazine published 4 times a year (free trial issue available)
- Discussion Boards for Teens, Parents, those with continent diversions, other
- YODAA is an Affiliated Support Group (ASG) of the UOAA
International Ostomy Association
United Ostomy Association of Canada
Campaigns and Media
Uncover Ostomy - Jessica Grossman's awareness project to inspire a positive online discussion about her ostomy and increased quality of life for people suffering through terrible illnesses.
Talkin' 'Bout Guts - A new podcast that takes 'guts' talk out of the bathroom and into living rooms across the world!
Networking
Meet An Ostomate - Dating service for ostomates.
Shaz's Website - An interactive support page for new and experienced ostomates.
Medical Information
American Gastroenterological Association - Advancing the Science and Practice of Gastroenterology
Cleveland Clinic - National top four for hospitals with emphasis in colorectal surgery
Wound, Ostomy & Continence Nurses (WOCN)
- Professional Society for nurses who specialize in these fields
- Locate a nurse near you
Social Security and Disability
Medical Professionals
Dr. Brad Champagne - Colorectal surgeon and speaker at YODAA's 2008 conference
Virtual Network Partners
Thirty Plus Network - A UOAA ASG geared toward those who are 30 years old and beyond
GLO (Gay and Lesbian Ostomates) - A UOAA ASG geared toward gay/lesbian and bisexual ostomates, their friends, and families
Local Support Groups
-
We encourage all of our members to attend the meetings with their local support groupds. To find a local group in your area, Click Here.
Diagnosis-Specific Links
Cancer
Exstrophy
Association for the Bladder Exstrophy Community (ABC)
Familial Adenomatous Polyposis (FAP)
Hirschsprung's Disease
Hirschsprung's Disease Information
IBD - Crohn's Disease and Ulcerative Colitis
Crohns & Colitis Foundation of America (CCFA)
IBS Crohn's - Excellent website for info
J-Pouch Support and Information
Red Lion Group - The UK charity for people who have, or are considering having, a J-pouch operation
Spina Bifida
Spina Bifida Association (SBA)